Christine Piacentino's Blog – January 2011 Archive (2)

Advocacy Really Does Matter!

 

My advocacy efforts started very early on. It all started at the PPMD Annual Conference, when Dr. Lee Sweeney said “To improve lives of patients with Duchenne and Becker Muscular Dystrophy the real change would have to come from the government through the National Institute of Health. Awareness about Duchenne and Becker needs to be increased within the NIH community”. I did not know any one at the NIH so I decided to contact my Congressional representative. In 2000 it was…

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Added by Christine Piacentino on January 13, 2011 at 2:30pm — No Comments

Faith and Hope

"Faith is the very first thing you should pack in a hope chest." ---- Sarah Ban Breathnach…

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Added by Christine Piacentino on January 8, 2011 at 11:40am — 3 Comments

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