Ryan Fischer's Blog – September 2014 Archive (3)

Congressional 21st Century Cures Initiative: PPMD Ensuring our Duchenne Community’s Place At the Table

PPMD is continuously seeking innovative opportunities to impact the process of developing therapies for Duchenne. Opportunity comes in many forms - funding promising research, advancing care standards for all patients, and advocating for key changes in federal policy.


Earlier this year Congress launched the 21st Century Cures Initiative, a comprehensive look at what can be done to accelerate the pace of cures in American therapeutic…


Added by Ryan Fischer on September 15, 2014 at 12:00pm — No Comments

We Got Annie

Timing is everything. When I think back on how I found Pat, Kimberly, and PPMD ten years ago to the month, I often think about the events that led to that faithful interview in the fall of September 2004. Sure, maybe some of it was luck, but I also believe there was a higher power at work. When I spoke to Pat the first time…


Added by Ryan Fischer on September 10, 2014 at 4:00pm — No Comments

Action Alert: Tell the Senate to take action on MD-CARE Act!

Congress has returned from their Summer recess and it is time to re-engage them on the MD-CARE Act Amendments. We need each member of our community to reach out to your Senators and urge them to tell leadership to bring the…


Added by Ryan Fischer on September 9, 2014 at 10:35am — No Comments

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