Ryan Fischer's Blog – June 2014 Archive (2)
Progress Update! House Subcommitee Clears MD-CARE Act for Next Step
UPDATE - June 20, 2014
Progress! Yesterday the House Energy & Commerce Subcommittee on Health voted via unanimous voice vote to advance H.R. 594, the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014. This action moves the bill one step…
ContinueAdded by Ryan Fischer on June 18, 2014 at 9:30am — No Comments
Lend Your Voice to the FDA Draft Guidance on Duchenne to Speed the Development of Therapies
Strength Happens Together
For the past four months, over 80 experts in Duchenne (including patient representatives and groups, industry, clinicians, and researchers) have been working…
ContinueAdded by Ryan Fischer on June 4, 2014 at 4:00pm — No Comments
Latest Blog Posts
- 70 Members of Congress Send Letter of Strong Support for Duchenne Priorities for Next Year’s Budget
- End Duchenne Tour Recap: Grand Rapids, MI
- ADD YOUR VOICE: Participate in PPMD’s Gene Therapy Survey
- End Duchenne Tour Recap: Morristown, NJ
- PPMD's 2018 Advocacy Conference | Schedule of Events
- VIDEO: Fundamentals of Access to Duchenne Therapies
- PPMD’s #EverySingleOne Tour: Boston, MA
Most Popular Blog Posts
- ACTION ALERT: Urge Lawmakers to Keep Driving Progress in the Fight to End Duchenne
- One week away from World Duchenne Awareness Day!
- Important Updates on the Duchenne Policy Forum
- ACTION ALERT: Urge House Member - Apply FDASIA Tools to Duchenne
- CALLING ALL CALIFORNIA RESIDENTS!
- ACTION ALERT: Please urge Your Senators to Sign Letter to FDA – Applying FDASIA Tools to Duchenne
- Help Protect Federal Spending on Rare Diseases like Duchenne
© 2020 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
