Ryan Fischer's Blog – March 2014 Archive (3)

3 Actions You Can Take to Tell the FDA to Speed the Approval of New Therapies for Duchenne

As a community, we must continue to demand that the FDA use all available tools given to them by Congress to speed the approval of new therapies to all who so desperately need them. The voices of patients and caregivers are critical to the process of drug development and we believe the message is being heard.


Here are 3 simple actions you can take to support & amplify that message:


  1. Urge your…

Added by Ryan Fischer on March 19, 2014 at 12:10pm — No Comments

Action Alert- Ensuring Federal Agencies Working on Duchenne Receive Proper Funding

Though the MD-CARE Act remains our top priority, we need to ensure that agencies receive adequate funding and direction for the programs that are so critical to our community. One tool we use to ensure that funding and direction is our Congressional funding letter. It has made a tremendous impact on appropriations. 

To illustrate this point, let’s look at how our yearly funding letters have impacted the NIH’s…


Added by Ryan Fischer on March 14, 2014 at 9:30am — 4 Comments

MD-CARE Act: Adding New Cosponsors

It's been just one week since the 2014 Advocacy Conference, and we have already upped the number of cosponsors for the MD-CARE Act! We are now at 85 in the House & 21 in the Senate. Please take a moment to reach out to our newest cosponsors listed below thank them.

This community is…


Added by Ryan Fischer on March 4, 2014 at 4:00pm — 1 Comment

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