Ryan Fischer's Blog – January 2014 Archive (2)
FDA Guidance Update: Representing the Duchenne Community
An update on developing "Draft Guidance on the Clinical Investigation of drugs and biologics for Duchenne and Becker muscular dystrophy"
One of PPMD’s priorities is speeding development of reliable diagnostics and safe and effective medications for all individuals diagnosed with Duchenne or Becker…
ContinueAdded by Ryan Fischer on January 28, 2014 at 2:00pm — No Comments
Register for the 2014 Advocacy Conference (Feb 23-25)
You are invited to join us in Washington (February 23-25) for what is going to be another critical year in Duchenne advocacy. As you know our efforts last year were focused on collecting cosponsors for the MD-CARE Act (MDCA) reauthorization. To date we stand at …
ContinueAdded by Ryan Fischer on January 16, 2014 at 10:00am — No Comments
Latest Blog Posts
- 70 Members of Congress Send Letter of Strong Support for Duchenne Priorities for Next Year’s Budget
- End Duchenne Tour Recap: Grand Rapids, MI
- ADD YOUR VOICE: Participate in PPMD’s Gene Therapy Survey
- End Duchenne Tour Recap: Morristown, NJ
- PPMD's 2018 Advocacy Conference | Schedule of Events
- VIDEO: Fundamentals of Access to Duchenne Therapies
- PPMD’s #EverySingleOne Tour: Boston, MA
Most Popular Blog Posts
- ACTION ALERT: Urge Lawmakers to Keep Driving Progress in the Fight to End Duchenne
- One week away from World Duchenne Awareness Day!
- Important Updates on the Duchenne Policy Forum
- ACTION ALERT: Urge House Member - Apply FDASIA Tools to Duchenne
- CALLING ALL CALIFORNIA RESIDENTS!
- ACTION ALERT: Please urge Your Senators to Sign Letter to FDA – Applying FDASIA Tools to Duchenne
- Help Protect Federal Spending on Rare Diseases like Duchenne
© 2021 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
