Lynne Taylor's Blog (2)

No more sleep studies in Wales

I am so angry!!

I met with the Welsh health minister Edwina Hart last year regarding the inadequate service provide to patients with Neuromuscular disease particulary Duchenne Muscular Dystrophy. At the time we were on a waiting list for a sleep study and had a delay of 18 months. She said that funding would be secured for an appropriately commissioned comprehensive sleep study. It's one year on and now I have found out that when our respiratory consultant leaves next month there will be… Continue

Added by Lynne Taylor on June 15, 2009 at 6:19pm — No Comments

New to forum

I have spent the last few days looking at the forum and I am very impressed. I have been waiting for a site like this for years. I have spent years angry, frustrated, confused, irate, astounded, fabbergasted and infurated with all the doctors, health visitors, social workers, teachers, OTs, physios etc, with no-one to share it with apart from my husband (who just says 'now try to stay calm'!!!). Now watch out - I can vent all my frustration and anger into words on the forum and everyone will… Continue

Added by Lynne Taylor on January 21, 2009 at 6:49pm — 2 Comments

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