As I sit here thinking about my 16th year of teaching (which begins tomorrow..Sept. 1), I am thankful for all the support from my middle school colleagues and kids. This summer has been wonderful and scary all at the same time. The Denver conference was amazing, and after it was over, I got speaking gigs at Acceleron (brilliant people work there, and work hard for all DMD boys), and also at the 2nd annual Becker Conference at Mass. General Hospital. I spent time with friends at my lake, as well… Continue

So, when I stopped walking several years ago, I thought my world was over. The planet is not made for someone sitting down. I mentally crashed, and found a counselor who had experience dealing with adults with chronic physical illness...in my case, this was Becker MD. He did offer me strength and perspective, but one of the funny things (and if you are reading this and you know me...then....) at a session was when he compared chronic illness to someone standing on a stairway and looking down.… Continue

Thanks to everyone for their words of encouragement at this year's conference. It's funny how many people tell me I give them strength, when it is actually all of YOU that give me the strength to present with honesty, compassion, and humor. We all have one life to live. In one of my favorite movies: The Shawshank Redemption, the character of Red utters an important line:



Get busy living, or get busy dying.



I choose living. We must all see the glass as… Continue