MommaToo's Blog – January 2009 Archive (2)

Caring Bridge Link

http://www.caringbridge.org/visit/brandonrice

Brandon's mom (Catriena Wheeler, also a member)) and I will be working on this together. Wish us luck and please leave lots of comments! Its our first attempt at trying to keep everyone near and far informed on Brandon.

Added by MommaToo on January 11, 2009 at 3:00pm — No Comments

Hits close to home.

I am having a terrible time sleeping. After reading about the TWO 13 year old boys with Duchenne's who passed away already this year, I am just heart broken! I cant imagine what the parents must be feeling. Although you know that your child is expected to have a limited life expectancy, you sure don't expect it to be 13! I guess it hit pretty hard because we have a soon to be 14 year old. Although he is doing well over all, little things seem to be happening and sneaking up on him.

Brandon… Continue

Added by MommaToo on January 10, 2009 at 7:30am — 2 Comments

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