My son passed on March 21st.  Although it was peaceful, it was the most heart wrenching thing I have ever been through.  I just wanted to stop everything, but couldn't.  It was so fast.  He was fine, then 3 days later, gone!  I am glad he didn't suffer, but just have so many regrets.  It hasn't got easier yet.  Lets pray a cure or at least a treatment can be found soon so no one ever has to go through this again.

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http://www.caringbridge.org/visit/brandonrice

Brandon's mom (Catriena Wheeler, also a member)) and I will be working on this together. Wish us luck and please leave lots of comments! Its our first attempt at trying to keep everyone near and far informed on Brandon.

I am having a terrible time sleeping. After reading about the TWO 13 year old boys with Duchenne's who passed away already this year, I am just heart broken! I cant imagine what the parents must be feeling. Although you know that your child is expected to have a limited life expectancy, you sure don't expect it to be 13! I guess it hit pretty hard because we have a soon to be 14 year old. Although he is doing well over all, little things seem to be happening and sneaking up on him.

Brandon… Continue

As most people know, I am Brandon's step-mom. I met Brandon when he was 5. His dad and I started doing some serious dating in January 2001. Brandon would come to my apartment and have a horrible time going up the stairs. By May, we were married, and by the end of June I had moved in with Brandon and his dad. Brandon was hyper and WILD! He run around and fell almost NON-STOP from the time he got up till the time he literally fell over to sleep. He had severe ADHD and some pretty MAJOR behavior… Continue