Annie Kennedy's Blog – December 2014 Archive (3)

The Solid Suit: Combining Forces to Enhance Strength

(Pictured from left to right: Stanley Nelson, MD, Center for Duchenne Muscular Dystrophy at UCLA, Thomas Sugar, PhD, Arizona State University Polytechnic School, Tom Egan, SRI International, Roy Kornbluh, SRI International, Laura Case, DPT,…


Added by Annie Kennedy on December 18, 2014 at 9:57am — 1 Comment

PPMD Holds Congressional Briefing

It was seven months to the day that Representatives Upton and DeGette first launched this bold initiative called 21st Century Cures. In fact, that hearing that would set in motion months and months of proposals for sweeping changes to research infrastructure and academic systems took place just across the hall from where we were now gathered. PPMD,…


Added by Annie Kennedy on December 16, 2014 at 9:30am — No Comments

ABLE Act Changes Disability Landscape – This just got real!

If you’re like many families, birthdays and holidays often bring gifts from friends and loved ones far and wide. As my son just celebrated his fourth birthday, he would tear through packages in the hope of finding a new Lego set or Ninja Turtle. He was a bit less interested in the envelopes that accompanied the gifts but patiently waited as Mommy read the cards to him and announced who each gift was from. And the concept of monetary gifts was a bit lost on him. The…


Added by Annie Kennedy on December 3, 2014 at 6:00pm — No Comments

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