Annie Kennedy's Blog – October 2016 Archive (4)

The Assistance Fund Launches Duchenne Program to Support Access to Exondys 51

Patient Assistance programs are typically non-profit organizations sponsored by drug companies, patient advocacy organizations, and civic groups that establish disease specific programs to facilitate access to brand-name medications.

In the case of…


Added by Annie Kennedy on October 28, 2016 at 11:00am — No Comments

ABLE Accounts: Improvements Moving Through Congress & Determining Which State’s Program is Best for You?

With the initiation of 4 states ABLE programs already begun and Oregon having just anounced that their program will launch in December, any qualified individual (meaning most families with Duchenne) can open their accounts in 2016, if interested. We have previously shared information about the ABLE program and the…


Added by Annie Kennedy on October 13, 2016 at 8:37pm — No Comments

Calling All Adults with Duchenne/Becker – Join the 2017 PPMD Adult Advisory Committee!

Ever wished you could change the world – or at least your piece of it? Been looking for a way to engage a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts?

PPMD is seeking adult members of our Duchenne/Becker community to serve on the PPMD Adult Advisory Committee…


Added by Annie Kennedy on October 12, 2016 at 11:30am — No Comments

[Webinar Takeaways] Preparing for Access to Approved Therapies

Last week, PPMD began a webinar series on access – an exciting new chapter for our Duchenne community. But we are just at the beginning of this chapter and there is lots to explore.

We knew this day was coming – we knew that one day we would have our…


Added by Annie Kennedy on October 11, 2016 at 3:00pm — No Comments

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