Annie Kennedy's Blog – July 2015 Archive (3)

Participate in ABLE National Resource Center Survey

Since the enactment of the Stephen Beck, Jr., Achieving a Better Life Experience Act of 2014 (ABLE Act) in December 2014, PPMD has been working with leading disability organizations to ensure that states adopt and effectively…


Added by Annie Kennedy on July 20, 2015 at 12:00pm — No Comments

PPMD's 2015 Duchenne/Becker Transitions Meeting Recap

“We are the population that was hoped for — and now we’re here.”

- L. Vance Taylor

This statement made by a close friend of mine perfectly captures the spirit that satiated the room at the PPMD Duchenne/Becker Transitions Meeting which took place at this year's Connect Conference. For two days, teens, young adults, parents,…


Added by Annie Kennedy on July 13, 2015 at 11:00am — 1 Comment

21st Century Cures Passes House of Representatives!

21 Century Cures. First a bold concept led by two visionary congressionary leaders on April 30th, 2014.

Then innovative ideas poured in to Washington from the world’s best and brightest developers and innovators.

Then lots of Hearings, and roundtables, and Hill meetings, and constituent visits.

Then ‘provisions’ were structured which pulled…


Added by Annie Kennedy on July 10, 2015 at 11:35am — 2 Comments

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