Annie Kennedy's Blog – March 2015 Archive (3)

Update from the PAAC: “We’re all hooked into one world now!”

On January 15 of this year we introduced you to an incredibly special group of people, PPMD’s Adult Advisory Committee. The PPMD Adult Advisory Council (PAAC) serves to ensure that the voices of adults living with Duchenne and Becker muscular dystrophy…


Added by Annie Kennedy on March 16, 2015 at 11:00pm — No Comments

Spring Forward: Bringing the MD-CARE Act to Life

Despite great odds in a political climate that was stacked against us – we achieved what was considered to have been impossible. After months of outreach to congressional champions and visits to Capitol Hill, the MD-CARE Act Amendments were passed and signed into…


Added by Annie Kennedy on March 15, 2015 at 12:04pm — No Comments

We Need YOU to Help Us With the Development of the Solid Suit

In December, we announced the launch of an exciting collaboration between PPMD, Solid Ventures, and SRI International to develop the ‘Solid Suit’. The Solid Suit is…


Added by Annie Kennedy on March 2, 2015 at 2:30pm — 1 Comment

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