December 2012 Blog Posts (11)

My Voice: Mohammed Haider, 23 years old

You recognize the face and the name from this year’s holiday campaign – college graduate, working on his Master’s degree, funny. But who is Mohammed “Mo” Haider? What’s his story? This month we introduce you to a great guy who has been part of this community…


Added by Will Nolan on December 17, 2012 at 1:55pm — No Comments

how do u stop your heart from breaking

My seven year old son jacob, has been sick for over a week now with bronchitis. We were riding to school one day and he looks over at me and says mama will i be better by christmas. Of course i say yes thinking he was talking about the bronchitis. He then looks at me and says you had whats wrong with me when you were little and you got better. It broke my heart to look at him and say no baby i meant the bronchitis. Of course he looks at me…


Added by danielle on December 16, 2012 at 3:54pm — 1 Comment

End Duchenne Gala: 12.6.12

On December 6, 2012, PPMD held its inaugural End Duchenne Gala in New York City. It was a truly remarkable evening thanks in large part to the organizing committee (Catherine Collins, Anessa Fehsenfeld, Janelle Hester, Vicki Singh, and Paula Zenobio) and a room full of compassionate, generous guests...including acclaimed author,…


Added by PPMD on December 13, 2012 at 4:30pm — No Comments

Exon Skipping & Improving Industry Communications

The 194th workshop of the European Neuro Muscular Centre (ENMC) met in Naarden, The Netherlands, December 7-9, 2012. The title of the workshop was, “Towards Clinical Application of Antisense-mediated Exon Skipping for Duchenne Muscular Dystrophy – Opportunities and Challenges.”  25 representatives of industry, research, care and advocacy from around the world…


Added by Kathi Kinnett on December 13, 2012 at 12:30pm — No Comments

The Greatest of These

Photo Credit


12 months of IVY blogs…


Added by Pat Furlong on December 13, 2012 at 10:30am — No Comments

Help us Reauthorize the MD-CARE Act

I am often asked: "How can I help in the fight to end Duchenne?" and "What are things I can do to make a difference?" My answer is always Advocacy.

You are already…


Added by Ryan Fischer on December 12, 2012 at 11:31am — 1 Comment

Webinar Q&A: Cardiac Interventions

Parent Project Muscular Dystrophy recently hosted the second part of our Cardiac Webinar Seriers with Dr. Larry Markham (Children’s Hospital Vanderbilt, Vanderbilt, TN) and Dr. J. Lynn Jefferies (Cincinnati Children's Hosptial, Cincinnati, OH) to discuss cardiac…


Added by Kathi Kinnett on December 5, 2012 at 4:30pm — No Comments

Sunday afternoons

Sunday afternoons were special to me as a young boy.  Time moved slowly and the only limits were the ends of my imagination fueled by the most recent western I was watching.  The good guys wore white hats and men protected women and children from attacks by circling covered wagons.  I miss the simplicity of a child’s world and the certainty of solutions that came by following a specific formula. 

Like all kids, I wanted to grow up quickly, failing to realize what I had to give up…


Added by Brian Denger on December 4, 2012 at 9:15pm — 1 Comment

TODAY at 3pm EST: Join CDC in recognizing International Day of Persons with Disabilities

Participate and Promote International Day of Persons with Disabilities!

TODAY at 3pm CDC will recognize people with disabilities with several activities, highlighted by a special Twitter Town Hall hosted in collaboration with the United Nations and other partners. This special Twitter town hall will focus on how we all can work together to provide an inclusive and accessible health environment for people with disabilities.…


Added by PPMD on December 3, 2012 at 2:16pm — No Comments

Pat Furlong to Speak at Institute of Medicine's Roundtable on Translating Genomic-based Research for Health

Parent Project Muscular Dystrophy (PPMD) founding president and CEO Pat Furlong, has been invited to speak today at the Institute of Medicine's (IOM) Roundtable on Translating Genomic-Based Research for Health. IOM is holding a public workshop today in Irvine, CA titled "Improving the Efficiency and Effectiveness of Genomic Science Translation."

Pat is a member of IOM's Committee on Pediatric Studies and is thrilled to be participating in the discussion "The Role of…


Added by PPMD on December 3, 2012 at 11:00am — No Comments

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