Featured Blog Posts – December 2011 Archive (5)

AVI's Duchenne Program

Google and social networking enable news – both good and bad – to travel far and wide. Google Alerts have informed us that AVI’s stock has fallen below $1.00 and press releases talked about changes within the company. Amazing that we are all becoming experts on NASDAQ and stock prices!


Families participating in trials and others waiting for next exons and next steps, sit on the sidelines wondering and worrying.


I spoke with Chris Garabedian this morning (so…


Added by Pat Furlong on December 21, 2011 at 11:30am — 5 Comments

Help Your Friends Make It Happen!

Some of the most asked questions we get at PPMD are:

  • How can I help?
  • How can my friends/family help?

Especially this time of year, our loved ones want to get involved and want to give. We want to make supporting PPMD as easy as possible for you, the person asking your online and offline world, to give and for the donor themselves. So we've come up with a few unique ideas to help you help your friends to make it happen!…


Added by Will Nolan on December 16, 2011 at 9:28am — No Comments

PPMD’s 2011 Report Card

This time of year everyone is in holiday mode, or getting into holiday mode, or sick of being in holiday mode. But something else happens this time of year that effects many of us – especially our children. Report cards. The end of the year is when teachers meet with parents to tell them how little Timmy is doing in class. If Timmy is in high school or college, grades…


Added by Pat Furlong on December 13, 2011 at 2:30pm — No Comments

Holiday Co-Blog

For the holidays, Pat and Ivy have co-blogged about words that are particularly used this time of year. These words are often redefined by our community because our everyday life requires new definitions. But that does not mean that we must be denied any of the joy of the holiday season.

Happiness and Joy

by, Pat…


Added by Pat Furlong on December 7, 2011 at 11:47am — 4 Comments

Endocrine Meeting. Toronto. December 1 and 2, 2011

Endocrine issues are deeply personal to every one of us. They represent our masculinity, our femininity. They impact our weight, our height and how we look. As our boys with Duchenne grow and develop into adolescents, they and their parents are faced with these intensely personal and complex issues. The purpose of this meeting was to engage with experts to develop information related to these issues that parents and their sons might use with their physicians to encourage (or insist) upon a…


Added by Pat Furlong on December 5, 2011 at 9:45am — 6 Comments

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