November 2010 Blog Posts (9)

Giving thanks.

Deepest thanks to you, the PPMD family, for coming together to speak in One Voice over the past year. I had one conversation this year that really epitomized the idea of our community speaking as one voice . I’ve shared it with you through the Fotobabble video below.

I hope you'll watch my message of hope and consider adding your own

Add to our voice, and create your own Fotobabble “card” to share what you’re thankful… Continue

Added by Pat Furlong on November 23, 2010 at 1:00pm — No Comments

lego athlete

Today I decided to stop wondering what it might be like to see Cody

shoot a basket during a basket ball game. Or see Josiah hit a baseball

and run like the wind to get on base. In stead I took a deep breath and

sat down be side my sons as they put together a new Lego kit. I leaned

in between them fitting myself in the tiny space between their wheeled

chairs. Happily they made efforts to pull themselves a few inches over

to allow me space enough to be apart of their… Continue

Added by Rita Felling on November 17, 2010 at 12:52am — 4 Comments

8 Point Plan to coping with DMD for parents

Everyone knows there's no real guide out there for parents to deal with

DMD. So heres my humble 8 point plan to nudge you in the right

direction. Please read below;

8 point plan to coping with DMD for parents.

1, Despite everything stay as positive as you can but cry when you need too (this goes for your child with DMD too!). Holding it inside

builds tension and can lead to arguments. Let out the bad feelings,

comfort each other and move on without… Continue

Added by Ian Anthony Griffiths on November 16, 2010 at 2:25pm — 10 Comments

It was bound to happen

Well, a couple days ago we put in an order for Lucas' first wheelchair. As the provider said - "and so now the fight begins" when referring to the insurance companies.

Lucas has been getting around in one of three ways: 1) medical stroller being pushed, 2) scooting around in his walker, 3) or me carrying him to his ultimate destination. The walker which he was primarily using was the kind with the seat and wheels. The seat was starting to give out so I put some aluminum angle iron… Continue

Added by Servais Family on November 12, 2010 at 7:40pm — 2 Comments


Yesterday, the 2010 WebMD health heroes were announced.…


Added by Christine Piacentino on November 11, 2010 at 4:00pm — No Comments

Dr. Rhodes -- STS

I spoke at length last week with Dr. Rhodes about ways that we could better determine the effectiveness for DMD of his VECTTOR electrical stimulation system, which Dr. Rhodes says stimulates acupuncture points, reflexology points and free nerve endings. Dr. Rhodes was very up front about the fact that he isn’t a scientist and isn’t an expert on DMD and his actual professional training is in podiatry. He has supplied his VECTTOR machine to 36 families with muscular dystrophy—he didn’t specify… Continue

Added by Sharon Hesterlee on November 10, 2010 at 10:57am — 21 Comments

My heroes

How we choose a person as a hero is often related to individual interpretation or current societal trends. Many people today claim athletes or entertainers as heroes, while others choose political figures. In general, I don't agree that exploiting a talent for the entertainment of others or seeking public office and financial gain meets that standard. The days when we looked up to people who overcame great challenges or adversity seems to be gone, with a few rare exceptions.

A lot of… Continue

Added by Brian Denger on November 9, 2010 at 7:34pm — 10 Comments

Shea Racing Takes 6th in Championship & Raises Over $14,000 for PPMD

Alton, Virginia – Virginia International Raceway closed up the 2010 season for Shea Racing taking 6th in the SCCA Pro Racing World Challenge Touring Car

division. Due to hard work, dedication and perseverance Shea Racing can call

their debuted year of professional racing a success.…


Added by Shea Holbrook on November 3, 2010 at 12:00am — 2 Comments

Internal Conflict

As a young boy I traveled each summer with my family from our home in Maine to Ohio to stay with my grandparents on their farm for a few weeks of vacation. The drive was long and boring for my siblings and me. This was long before handheld computer games and portable music and video players. Radio stations were infrequent and my parents’ car only received an AM signal. My siblings and I played cards and tried to identify license plates on cars from as many states as…


Added by Brian Denger on November 1, 2010 at 9:06pm — 3 Comments

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