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Featured Blog Posts – October 2016 Archive (3)

Staff Deflazacort Access: Navigating Potential Changes to Your Prescription

In an effort to answer some of the questions that have arisen with the potential FDA approval of deflazacort in the U.S., PPMD has worked with both Masters and Marathon to put together the resource below, which we hope will provide clarity.

Webinar…

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Added by Kathi Kinnett on October 31, 2016 at 2:00pm — No Comments

Staff PPMD Designates Center for Duchenne Muscular Dystrophy at UCLA, a Certified Duchenne Care Center

PPMD Awards Twelfth Clinic Certification as Part of Effort to Ensure People with Duchenne Receive Optimal Care

The Center for Duchenne Muscular Dystrophy at the University of California, Los Angeles…

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Added by PPMD on October 26, 2016 at 3:02pm — No Comments

Staff PPMD Demands Anthem Reconsider Coverage of Approved Drug

It is hard to imagine anything worse than receiving the diagnosis of Duchenne. The dates and odysseys that brought us into this community differ, but the fervor we share to slow and stop the progression of this disease as it marches through our children is unparalleled in any community.

But today I know that there actually is something worse…

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Added by Pat Furlong on October 14, 2016 at 12:02pm — No Comments