As many of you know, there has recently been a recall of 2 batches of deflazacort. The recall is specific to deflazacort 30mg, (Marketing Authorisation Holder: Sandoz) and was recently issued by the Spanish Agency of Medicine. The batches that are affected and subject to the recall notification are J021 (expiry 30/06/2017) and J028 (expiry 30/09/2017).



Many families…

This year's Annual Connect Conference in Washington, DC, June 18-21 will be our biggest ever, with so much to look forward to, including our …

Today, SomaLogic and PPMD - together with several other Duchenne research groups - published a significant discovery that explains a technology allowing researchers to accurately measure the individual proteins in very small amounts of blood or other samples. By comparing patient and…

With this year's Annual Connect Conference in Washington, DC, PPMD wanted to take advantage of being in our Nation's Capital and ensure that our Duchenne community leaves an indelible imprint on federal policymakers.

Friday morning of the…

For 21 years, PPMD has been connecting the Duchenne community with experts in the field focused on research, advocacy, and care. Our largest gathering is, of course, PPMD’s Annual Connect Conference coming up June 18-21 in Washington, D.C.…

Last night, another beautiful spirit in the Duchenne community left this world much too early. Matt Petrusko was a 34-year-old from Rahway, New Jersey and a proud member of PPMD’s Patient Adult Advisory Committee (PAAC). His family told…

As you know, PPMD works very hard to keep you as up to date as possible. Sometimes those updates come very quickly, as has recently happened with recommendations for vaccinations. While we just recently published a new “altered vaccination schedule,” discussions with the Centers for Disease Control and Prevention (CDC) have again updated the recommendations for…

PPMD is excited to share with you the agenda for the 21st Annual Connect Conference in Washington, D.C., June 18-21 at the Washington Marriott Wardman Park. Every year our agenda grows and expands to include more of the topics you and your family are the most…