We have been a very busy family over the last few months. School is winding down, and we are really looking forward to a relaxing summer.
We've spend the last 5 months or so getting ready for the Seattle Rock and Roll Marathon and 1/2 Marathon. We have 8 members of Team Wyatt to raise money for Run for Our Sons. We have about 3 weeks left to raise money and so far our total is just over $6300.
I can't wait to share pictures with all my PPMD friends when the race…
ContinueAdded by Wyatt's Mommy, Melissa on May 29, 2010 at 5:02pm — No Comments
Added by Pat Furlong on May 28, 2010 at 4:00pm — 19 Comments
Added by Ian Anthony Griffiths on May 26, 2010 at 8:24pm — 7 Comments
All,
We (PPMD and Cure Duchenne) are working with FDA to organize a Webinar. The purpose of the webinar is education - about…
ContinueAdded by Pat Furlong on May 25, 2010 at 7:56am — No Comments
Added by Christine McSherry on May 24, 2010 at 4:28pm — 1 Comment
Added by Pat Furlong on May 24, 2010 at 12:58pm — 6 Comments
Added by Ian Anthony Griffiths on May 22, 2010 at 8:26pm — 3 Comments
Getting ready for the normal high school milestones in our house is always a creative endeavor. At the beginning of April Jon came home from school and said that he wanted to attend Prom. He asked if he could attend the prom without renting a tux. Our goal is to have Jon experience all the normal things kids his age get to experience. I said, yes we should get a tux. The month of April flew by. On…
ContinueAdded by Christine Piacentino on May 19, 2010 at 11:30am — 3 Comments
Added by Andrew Kerr on May 17, 2010 at 12:32pm — 1 Comment
I am so excited!! My son is graduating from college in two weeks after 4 years. (better than me). He is graduating cum laude from our local universities Honors College.
I just never thought this day would ever come when he was diagnosed 17 years ago...
Added by Margaret Cohan on May 14, 2010 at 9:14pm — 12 Comments
Added by Ian Anthony Griffiths on May 13, 2010 at 3:38pm — 15 Comments
Added by Brian Denger on May 12, 2010 at 4:44pm — 4 Comments
Added by Rita Felling on May 8, 2010 at 12:36am — No Comments
Added by Sharon Hesterlee on May 7, 2010 at 9:34am — 19 Comments
The wind in my sails may be coming back.
Two things have occurred that provide me with some hope that Ataluren may still be viable.
One was the…
ContinueAdded by Christine Piacentino on May 7, 2010 at 9:10am — No Comments
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