Seems like a long time ago, Kimberly and I went to the Starting point of the Disney Marathon. I had no idea what to expect, having never watched a marathon and absolutely no desire to run a city block let alone 26.2 miles. One mom had called Kimberly to talk…Continue
Added by Pat Furlong on January 30, 2012 at 2:30pm — No Comments
PPMD President Pat Furlong and Colorado FACES Coordinator Ivy Scherbarth co-blog about the older patients in the Duchenne community, and what we can learn from the journeys they have been on. They are the real Duchenne experts. We hope that after you read these entries, you'll post your own thoughts on the topic.
Listen & Learn…Continue
With deficit reduction remaining a top priority in Congress and a $1.2 trillion spending reduction on the horizon, 2012 will be a critical year to protect Duchenne research and public health priorities. For this to happen, we need your voice on Capitol Hill now more than ever before. Whether that be by joining us in Washington at the Annual Advocacy Conference or advocating from home by contacting…Continue
Added by Ryan Fischer on January 5, 2012 at 2:00pm — No Comments
I wanted to share with you a few of my resolutions for 2012...mainly goals for PPMD and the Duchenne community, but also a couple of personal reflections. 2011 was an incredible year for Duchenne. We made great strides in research, care, advocacy, and in raising awareness. But there is still so much I want to tackle...we all want to tackle.
Read over my resolutions and then please take a moment to share some of your own. This time next year, we can all check back and see…Continue
Writing you a quick note - can't wait to see everyone in Orlando! I'll be attending the Pasta Dinner on Friday & running the 5k Saturday!
I can't express how greatful I am of the Parent Project MD communtiy. You've all changed my life! Looking forward to meeting new faces. If your family is interested in coming to one of my races VIP style contact me via firstname.lastname@example.org and chat with me while at Disney!
Added by Shea Holbrook on January 2, 2012 at 9:20pm — No Comments