In the State of the Union speech last night, Obama said “We do big things”. It made me smile. Some days ago in an interview with Diane Sawyer, Mike Kelly, the astronaut husband representative Gifford (D, AZ). He spoke about his sorrow, sitting by the side of his wife, praying that she will fully recover after the gruesome shooting in Arizona. Ms. Sawyer asked if his perspective has changed after viewing the earth from the Space station. Mike Kelly smiled a very gentle smile at the…
ContinueAdded by Pat Furlong on January 26, 2011 at 3:15pm — 5 Comments
What better way to celebrate a new year than with one of the largest awareness campaigns in the history of Duchenne muscular dystrophy! If you haven’t heard by now, Clay Matthews (the MVP of this community!) and the Green Bay Packers are going to the Super Bowl! Clay is the NFL star that recorded a public service announcement (PSA) sponsored in part by our friends at Cure Duchenne and Cadillac. Because of Cadillac’s generosity and devotion to raising awareness on behalf of our sons, this PSA…
ContinueAdded by Pat Furlong on January 24, 2011 at 1:27pm — 8 Comments
Added by Pat Furlong on January 14, 2011 at 11:30am — 3 Comments
My advocacy efforts started very early on. It all started at the PPMD Annual Conference, when Dr. Lee Sweeney said “To improve lives of patients with Duchenne and Becker Muscular Dystrophy the real change would have to come from the government through the National Institute of Health. Awareness about Duchenne and Becker needs to be increased within the NIH community”. I did not know any one at the NIH so I decided to contact my Congressional representative. In 2000 it was…
ContinueAdded by Christine Piacentino on January 13, 2011 at 2:30pm — No Comments
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