I am a Chinese port design engineer, 33 years old. I know that the United States is the world's most developed country in medical technology, a best embodies the humane care of the kingdom; I know PPMD, a DMD patient friend, bridge and even hope. Here I wish to have the opportunity for my son, a very smart 6- year-old boy, find a cure for DMD .
About my family:
I have only one son, 6 years old, called CHU HANG, whose name means he is free to sail on the sea. However, all this has changed in early 2014, my son was diagnosed with muscular dystrophy, it really bolt from the blue! I deeply love my son, I will never give up my efforts to cure. My son is missing exon 48-52, I know that the company serapta is studying exon 53 skipping drug. I whis not be long before the drug could come up at that time, my son, as well as with children suffering from dmd are able to rebirth. Thanks to American friends, thanks to American Scientists, thanks to all for the people who contribute to dmd cure!
Age(s) of child(ren)/individual(s) with Duchenne:
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Hi, My name is Prakash. My 3-yr old son was recently diagnosed with DMD. While looking at the US Clinical Trials site, I found this trial which seems to be underway in China (http://www.clinicaltrials.gov/ct2/show/NCT01610440). I have no idea what the status of the trial is and was wondering if you would be able to find out?