I am a mother of 4year and 9 months old boy Aakansh who is recently diagnosed with DMD one month back, and another hit back for me is that he is autistic non verbal hyperactive child ,,,I was fighting with autism with him from 3 years and now DmD ,I am completely lost ,really don't know what to do ,I live in India in New Delhi..please help me ,show me some light..
About my family:
In my family me ,my husband ,my elder son 13 years old and younger so Aakansh is 4 1/2 .
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Comment Wall (3 comments)
You need to be a member of PPMD Community to add comments!
Hello, Suruchi Yadav! My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 10,5 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. We must belive to light future our childred. If you ave a free time write me the letter. My email firstname.lastname@example.org.