Hi Maxine --How come the older I get the farther away Australia gets? Larry and I have kind of pulled back from attending PPMD conferences, but we remain as enthusaistic about and supportive of the organization as ever. We continue to want to know how our friends and their children are doing, so I"m glad you checked in. Love, M-Lou
I left real early in the AM on the last day..Unfortunately, I came home to have 2 close friends die suddenly last wednesday and just got home from one funeral and going to another on Friday.. Been a very hard 10 days or so..but I will give you notice if I am showing up on your doorstep..and I won't treat you like a pooo..
Hi Maxine - I'm not sure if you rec'd my mail address!(I haven't quite found my way around the Site! ) It's firstname.lastname@example.org
I look forward to hearing from you, especially about the Conference!
Hello Maxine, Very briefly, I read your page about your son and he sounds so similar to my grandson! He is now 9 and we have decided to take him out of School.His Pre School teacher has offered to teach him "one on one". He has a wonderful vocab & general knowledge & is just "different'. (also has whopping outbursts when frustrated!) Like you, I feel that there is not much understanding or real hope offered in S.A. Please tell me if you know how we go about finding Ethans "deletions?" Regards, Lesley
Icame upon your home page quite by accident & was so pleased & surprised to find someone else from S.A.! My grandson is 9 yrs old and presents as DMD. His exact condition is ? even though he had a muscle biopsy @ age 3. How do I find out about discovering his deletions? He goes to DR Lippert & Prof Rhodda.He is on pulmison, &has had heel cord surgery.My email address: email@example.com many thanks, Lesley Henderson