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I am sorry to hear about your situation. You have found a good website to get help. Please feel free to e-mail me any time, firstname.lastname@example.org In the state of California the Gas and Electric companies provide a medical baseline discount. I know PG&E does. You pay so much per therm or kilo watt and when you go over your baseline you are charged more. The medical baseline allows you to have a bigger baseline at the lower rate. Also, if you have limited income they provide a discount on your bill.
Each county's social services offered vary. Get in touch with them and find out what yours offers you. Your medical plan should be based on what will best serve your needs. As time goes on, if there is no treatment or cure and dmd progresses you will need expensive durable medical equipment. It is important to know what your plan offers. Notice I say, if the dmd progresses. There is a lot going on with research and there is more hope today then when my son was diagnosed. My son, Nick is going to 18 next month.
There is a lot to take in but everyone here offers support.
I wish you and your family only the best. Are you hooked into Shriners an MDA clinic?
Kim and Cheryl are both wonderful people to know.
I have to run but please take care,
We use CA Children's Services for our son's physcial and occupational therapy - they have been great. You will meet alot of wonderful families on this website. Reach out anytime for anything you need.
All the best.