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Started this discussion. Last reply by Lisa Jones Mar 10, 2013. 10 Replies 0 Favorites
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Can you connect with me on the skype. My son with PMD. He is 9.5. He goes to fourth grade. We are from Ukraine. I would like to know how do the family live with PMD in USA. I have lernt an Ehglish for special it. If you have a free time I will be wait your answer to my emal my.science.mail.ru or my skype alina1998831. I have a husband too, and my daughter is 18 old year.
StaffNicole Herring said…
Hi Lisa - sorry for the delay in responding to your questions about the St. Louis race. You are correct - this race is not organized but PPMD but we will have a team that is running together! You can join the team by visiting our website. If you have any additional questions or need more info, email me at nicole@parentrpojectmd.org. I look forward to having you on the team!
hi lisa, did you mention at one time that dmd patient could fly free to see dr wong? i'd like to know how one could do that...if you have any knowledge please let me know at richagupta@yahoo.com.....
thanks a lot and best wishes to you/family.
I did leave a post on one of your groups. My name is Leigh and I am the partner of Andrew, whose son has DMD with a duplication of Exon 2. It is fantastic to read all of your posts.
Thank you
Leigh
I am happy to say I need only one more mom & son! I have an interview this Sunday afternoon.That leaves my searching for another (1) intrested mom. I am hoping all is well! How is your daughter? Donna
Thank you do very much for your support! I really do appreciate your help. Not sure where to turn to locate 4 additional perticipants. And, I am so close to finishing the research. Thought you moms out there could be the best help. Again, thank you.
Donna
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