Welcome, I have a 4 year old Grandson with Duchenne and I am happy for every day he is with us. My daughter has taught me to focus on the joy he brings to our family, we know there are difficult times ahead but lets just enjoy the time we have with them, they are sent to our families because they are special and they are truly loved, Carol
Thanks for writing. I know what you mean that is they are always on your mind. There is not a day that goes by that I can't wait to see him just because I want to keep the happy times and sad times close to me. May daughter is expecting again. Her due date is 8/28/09. She wanted my grandson to have a little brother or sister so we are excited about the new arrival. I know they have groups out there but really I talk with my daughter and we share things and with this site it has helped. I guess as time goes by it will get harder but I know we need to stay strong for my grandson, Wyatt and my daughter and her great husband.