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Name(s) of child(ren)/individual(s) with Duchenne:: Jeff

Age(s) of child(ren)/individual(s) with Duchenne:: 4-6

City:: Boston

Tonus Therapeutics

I am one of the founders of Tonus Therapeutics which is working on a treatment for Duchenne Muscular Dystrophy. Our website is www.tonustherapeutics.com

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At 12:06pm on July 8, 2010, Suzanne Desmond said…: Hi Jeff, Welcome to PPMD Community. You have come to the right place. You don't have to feel alone anymore. My son Francis is 11 & has a Splice Site Mutation of DMD & is also on the Autistic Spectrum. If you have questions please don't hesitate to ask, if I don't know the answer I will find it for you. How old is your son? What mutation does he have? And, does he have DMD or BMD? Hate having to meet people this way, but just the same glad to meet you. God Bless! Suzanne

At 11:21pm on November 19, 2009, Jiten Budhdeo said…: Hello Jeff,

I am from India and my son who is 8 years now is suffering from Duchenne.
I read that you have cofounded a Company and are in preclinical trials now for a drug which can treat DMD. WOW !! That's amazing!! You must be very proud of what you are doing! You are like a Hero who can save his son from ....
Cheers and God Bless...
Jiten (Mumbai, India)

At 12:06pm on January 12, 2009, Jennifer Collier said…: Hi Jeff,
How old is your son? My little guy turned 3 in August. We live in Florida. I hope you find everything you are looking for on this site. It's a wealth of knowledge and support.
~Jen