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Did you ever get your carrier test done? An old post came up and I wondered if you were able to get it done. Forgive me if you posted this already and I missed it.
The weather will be warm by then. So bring short sleeves, and a sweather just in case. Would love to meet you.
I haven't been on here in a while, but thanks for the welcome! We've been around PPMD since around 1995 - our son was diagnosed in 1992 at 2 1/2. Bill will be 20 in June (hard to believe), is in community college, almost has his driver's license (long story) and is doing very well. He walked until he was 16 and had heel cord surgery (his only surgery so far besides tonsillectomy). He has been taking Deflazacort every other day since he was 8 1/2. His heart function is fine and pulmonary is still at 83% - all in all, we can't complain too much!
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