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Started this discussion. Last reply by Susan Rathfelder Oct 19, 2011. 1 Reply 0 Favorites
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I am a mother of 18 yr old son named Danny. He has duchene muscular dystrophy.
We live in southern Delaware, close to Rehoboth Beach. Danny is shy and have difficulties of having friends. He will be very glad to contact you.
How are you.....we spoke a couple of months ago. Our family has just moved to Potomac, MD.....we are happy to be here and looking forward to a new beginning.
We just fitted Saij for a power chair....could take up to 3 months to come. In the meantime, I wanted to ask you about toileting, showering and transferring him. Do you have some tips on how to do this without breaking backs. I would like to get together and have our families meet. Let's discuss when we might be able to do this.
Where are you located....my family and I are in the process of moving to MD....I am originally from NY but have lived outside the US for the past 10 years through my husband's job and have just relocated back to the States. I am looking for guidance and advice on all aspects of medical health insurance, medicare and other resources for healthcare, family counseling and other related issues.
I have a 15 year old daughter as well. We are all happy about our move back but at the same time, having been away for so long, feel somewhat lost about what to expect in all aspects of life.
Would love to hear about your story and your son with DMD.
keep writing and sharing whenever you want.
i am sure God will help us through this difficult time.
He'll be in camp next year.
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