hi .i recently joined this community .and was looking for people near tampa.i live in new tampa .my son aditya is 8 and was diagoned with dmd when he was 6.so far he walks with walding gait.I hope we all have a day ,when we can possibly say that we have a CURE for our sons.
Well we just found out the Malaky has CPK of 33000. I am devastated again. I have strengh more now than I ever thought i would need. Not too sure if I can take any more bad news. Your son is a darling. Probably nice and hot in Florida...we got snow this week....take care my dear!!
Hey Yenitza, thanks for the warm welcome. I am glad to know that others are going through the same thing as I am. I would love to get to know you and maybe our brothers can meet and get to know one another. Tampa is very close to us, we are in St. Pete. Have a great day!!
Welcome to PPMD, Yenitza. I have a 3 year old boy with DMD. We live in St. Augustine! It's nice to someone else from Florida. Please join the Florida Families Group!!! I hope to see you there.