Started Dec 6, 2011 0 Replies 0 Favorites
Posted on January 16, 2014 at 10:51am 0 Comments 0 Favorites
A family of 11…9 kids (the youngest with Duchenne), 2 parents and ALL of them participated in last weekend’s Walt Disney World Marathon. Bob McDonald, a PPMD Board Member, and each member of his family ran in at least one of the Disney races. Even his youngest son Mark, with Duchenne, participated via wheelchair. Everyone in the family took a little time and effort (okay, maybe a lot!) and did something to help end Duchenne.…
Posted on December 16, 2013 at 2:30pm 0 Comments 0 Favorites
Each month for the last couple of years we have featured people with Duchenne who have made an impact on their community and our community in some significant way. Whether working with their parents to host a fundraising event, participating in a race, speaking in Washington, D.C., or sharing their story creatively to raise awareness, all of the amazing people we have…
Posted on November 15, 2013 at 10:00am 0 Comments 0 Favorites
In a few weeks, PPMD will be hosting a Policy Forum on clinical trials of experiment agents This is a landmark meeting that will include participation from the FDA. It will also include Ansel Lurio, our Featured Voice for November. Ansel is a 29-year-old with Duchenne and has…
Posted on October 15, 2013 at 11:30am 0 Comments 0 Favorites
When a family hosts a fundraising event for Duchenne, we are thrilled and extremely grateful. When a family hosts the same event six years in a row, we are overwhelmed! This year the Pritchard family, along with their friends – Meghan and Jason Alpern – in Matthews, North Carolina will host the 6th…
Posted on September 16, 2013 at 1:04pm 0 Comments 0 Favorites
On September 28, 2013, families across the country will celebrate PPMD's Sixth Annual Coach To Cure MD. Coaches from nearly 600 universities and colleges around the country will wear a Coach To Cure MD patch to help raise awareness for Duchenne. Hundreds of high school coaches (and entire teams!) will also support this amazing event. TJ Clime and his family suited up and started supporting Coach To Cure MD weeks ago. This incredible third grader and his family have been on the field and TJ…
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Will
your family is so awesome! that baby boy is soooo cute. he is very lucky to have you and Steve as such great/loving/caring parents. thanks for all you do for us!
Jenny
Thanks for all your hard work and a wonderful conference!
I am looking forward to your reply.
I just wanted to let you know that my relianceabstract email is down. My work computer crashed a week ago and it's still in the shop. Please use this or my other email to contact me if you need to.