Vanessa Rangel
  • Female
  • Renton, WA
  • United States
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About me:
Genetic Counselor and previous DuchenneConnect Registry Coordinator
Seattle, wa

Vanessa Rangel's Blog

DuchenneConnect at Work: Helping Families Pursue Genetic Testing

Posted on May 24, 2011 at 3:14pm 3 Comments

This message is posted to help the community understand the diagnostic odyssey faced by Ryan B, a young man who was diagnosed with muscular dystrophy long before genetic testing was reliable enough to identify the specific cause of his muscle weakness. With today’s fast-breaking PR announcements, promising medical advances to treat many forms of muscular dystrophy are being discussed at a dizzying pace. It is challenging for families to sort through the hype and excitement to determine…


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