I am a stay at home mom and I sell real estate from time to time. I love to run, swim and fish. I also like to garden.
About my family:
My 18 year old son has Duchenne and is post kidney transplant. He will attend school at our local community college beginning this fall. I have been married for 22 years. I also have a 20 year old son who is attending FSU.
Name(s) of child(ren)/individual(s) with Duchenne:
We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Thanks for your kind attention to this,
Here is my email and phone number: firstname.lastname@example.org or (513) 765-9416