Valarie Ellis
  • Female
  • North Royalton, Ohio
  • United States
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Valarie Ellis's Friends

  • darlene blondin
  • Brian Wolf
  • Kari

Valarie Ellis's Page

Profile Information

About me:
I am the mother of a 12-year old boy who has Duchenne MD.
About my family:
3Children - Olivia (13); Jeffrey (12) and Dalton (2 months) and 3 step-children: Chelyn (14); Tara (12) and Cassie (9)
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
North Royalton, Ohio

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Comment Wall (9 comments)

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At 5:25am on April 2, 2009, Brian Wolf said…
Dalton is going to feel left out if you don't add him to you bio :)

When does softball season start???
At 8:18pm on August 26, 2008, Sharyn Thompson said…
Hi again Valarie,

it's hard not to be fiercely proud of our boys, isn't it? I know James is the light of my life and, whilst I have two beautiful girls whom I totally adore, I am also more protective of James and continually worrying about him. I know my girls are fine, but James? He just needs more "shadowing" by one of us.

As I've said before, Jeffrey is such a handsome boy and with those eyes he is going to be popular with the girls! (if he isn't already). He is doing so well, going to school without a motor scooter and being as active as he looks. I hope my son will be just as able when he is 11, though lately he seems to be having more and more difficulty doing things. Just last night Julian made a comment about how much tighter his legs have become and how he's having difficulty putting on his underwear and pants, and I think I ended up crying myself to sleep. It's unfair how we can't go through even one day without thinking about the fact he has DMD. I have just ordered James a book, Weakling Willie, as I feel we are nearing the time where we have to explain why he is having trouble doing things, something I have been dreading but needs to be done.

Anyway, sorry to ramble. Today isn't a good day, I suppose we all have good and bad days in the DMD world. We have also found out we are moving to London in the next few weeks, so my mind is racing at a million miles an hour, trying to think of all the things that need to be done.

It was lovely to hear from you - I am sure we will get to know each other better on this site.

At 4:21pm on August 26, 2008, Brian Wolf said…
YAY!!!!! I gots me some friends!
At 3:57pm on August 23, 2008, Brian Wolf said…
You made it! Good to see ya here!
At 8:46pm on August 7, 2008, Sharyn Thompson said…
Welcome Valarie, You have such a handsome boy - amazingly blue eyes!! How is he going? He looks like he is still walking really well and keeping really active. It is so wonderful to see.

At 4:19pm on August 7, 2008, Kari said…
You are welcome for the welcome! Your boy Jeffrey is handsome also. I too am very involved in the MDA but love the PPMD Community Board. MDA and PPMD have so many great things to offer. I just realized your spelling of your name is just like my next door neighbor which honestly was the first time I had ever seen it. I love the different spelling-it is cool!
At 12:02pm on August 7, 2008, Valarie Ellis said…

At 12:02pm on August 7, 2008, Valarie Ellis said…

At 4:52pm on August 6, 2008, Kari said…
Welcome Valarie to a great resource and support community.

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