Tina was a AIN and was in this job for 11 years .
She has always lived on the Central Coats.
Most of her family are from England.
she loves her Children & Hubby.
Darren to has always lived on the Central Coast
and this is not the first time he has come to know DMD.
When he was a kid his parents lived next door to a lady and she had three boy's they were all his friends & they all would wait for him to come home from school so they could play car's with him.
but they all lost the DMD fight.
That was about 18 years ago.
he loves his three kids and Tina.
We have been married for 10 years now and we have been through so much pain and stress.
With the death of my Grandmother 11 day's after our Wedding day,
Tyran's Diagnoses of DMD,
Moving House 10 times. & The stress of the new House.
But through it all we have never asked for help .....
We have always made a joint decision & we have the strongest bond & Love for each outer.
About my family:
HANNAH-LEE SUSAN HARRIS.
7TH FEB 2005.
She was our biggest baby born weighing in at a big 11 pound.
Yes that's right. BIG HAY.
Well it took us 11 months to get our little girl & she came in a big way.
I needed to have a Caesarean & I did not have a labour.
We were so Happy.
MARSHALL SCOTT HARRIS.
8TH AUG 2003.
He has all the up and go in the world
When we had Marshall we thought we were going to have a girl.
He weighed just 8 pound & I was in labour for 11 hours.
TYRAN JAMES HARRIS.
13TH JAN 2000.
At just 7 pound born I was in labour for 15 hour's.
I am going to take you back to 2005.
There were things changing in Tyran's little body that we just did not see Tyran's body was skin & bone so we took him to our Doctor & asked him "is Tyran to skinny" his reply was "he is just below his growth for his age and for us not to worry.
So we just went on about our life. But in 2006 is when our how life was turned up side down.Hannah-Lee was just 1 years old and Marshall was 2 years old so we had our hands full. Tyran's year 1 Teacher said to me that Tyran is fulling down all the time so we then took Tyran to see Dr Erickson & with out any blood taken he said "Tyran could have one of two things.
1. He may have a Thyriod problem
2. He has Muscular Dystrophy.
Tyran then went to have a blood test. We had the blood results the next day & the Doctor was right Tyran had MD but we needed to go to Westmead Children's Hospital for more test.
That night Darren tolled me about the three boy's he had grown up with and they all died from DMD.
All Darren was saying to me was "lets hope this is a milled form of MD." Well on the 23rd JUNE 2006 ( My Birthday ) We whent to Westmead Tyran had more tests we whereto go back in two weeks ( Darren's Birthday this time )
We were sitting whating to see Dr Webster in his room's & the moment we had been dreading was right in our face. Tyran has DMD. Dr Webster then explained to us what DMD was.Darren was in tears. Dr Webster then asked me to go and have a blood test to see if I had the same Abnormalities as Tyran and that we did not need to go back down to Westmead Dr Webster will call us with the results.On the trip home we were so quiet.
On the 30th SEP 2006 ( Our Wedding Anniversary ) We got a phone call. It was Dr Webster.
We had a quick chat on the phone about the kids & Darren then he said "I have your test results & your not going to like it."I took a deep breath. He said "Tina you are a carrier."Well that was it .I was crying and I could not stop. Darren then took the phone and said good by to Dr Webster and I went into our bedroom when Darren got of the phone he came into me and held me in his arms for some time and we just cried together.
So there you have it. We still have our bad day's but we are now 7 years from those day's Tyran is doing well but he is in his Wheelchair 95% of the time and he has mild Lung Disease.
He has a Power Wheelchair.
We go to Westmead every three months.
As you can see Tyran has had a Starlight Wish feel free to join my group.
Thank you for reading just a bit of our lives.
Tina & Darren Harris
Name(s) of child(ren)/individual(s) with Duchenne:
Tyran James Harris
Age(s) of child(ren)/individual(s) with Duchenne:
Woongarrah on the Central Coast NSW
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It is nice to meet you :-) I have a 16 year old (nearly 17) with DMD. He is doing well...uses an electric w/c fulltime. He has been on steroids since he was 5 which we feel has really been beneficial for him especially respiratory wise. His respiratory function is above normal (probably better than mine being a smoker..lol) He had spinal fusion done 18 months ago and it was during his operation that we discovered he has some issues with his heart. He has mild/moderate heart dysfunction.