Tiffany Cook
  • Female
  • South Florida
  • United States
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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Wil
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
South Florida

Comment Wall (3 comments)

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At 12:55am on May 23, 2010, Leslie Guzman said…
Hi Tiffany!,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you with this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
At 1:55pm on August 12, 2008, Jennifer Collier said…
Welcome to PPMD! Please join the Florida Families group!! Look forward to seeing you there!
At 7:55am on August 7, 2008, Kari said…
Welcome to PPMD Community for the support and resources at least but not for the reason why.
 
 
 

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