My wife Susan and I own and operate an outpatient clinic that provides physical, occupational, and speech therapy to children and adults. Our son Anthony inspired us to start the clinic in 2000, and we have been blest to be able to help many families with their challenges as others have helped us.
About my family:
Susan and I have three children; Matthew (19), and Meghan (14), and Anthony, who passed away on October 24, 2011 at the age of 22 from DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Tom, thank you again. i just got to read about y'all. You guys are an inspiration! I am very sorry for your loss as well. No one can imagine what its like to go through. When you build all of your life around that amazing person, and then they are gone...well things just don't really feel right afterwards. Maybe with more time. I am hoping to start a volunteer respite for families with DMD, and maybe even other ailments. Since we are military, that was the one thing we never had that could have helped us so much. I am finding out that its not s easy as it sounds due to all of the potential legalities-BUT I will not give up on this! I just want to help others-and maybe use Brandon to inspire OTHERS to help others. Thanks for the shoulder...
No, we won't be able to attend the conference this year due to prior family commitments, but we will definitely consider it for next year. Thanks again for reaching out and for the e-mail, I and my family really appreciate it.
Thanks Tom and sorry it took me so long to respond. Thanks so much for your kind response regarding our son Jaxson. We are hopeful that the research they are doing on exon-skipping and some of the early stem cell research will result in miraculous treatments for Jaxson and all the other boys with DMD.