Started this discussion. Last reply by Mindy Mar 28, 2011. 4 Replies 0 Favorites
Started this discussion. Last reply by cheryl cliff Jan 26, 2011. 18 Replies 0 Favorites
Started this discussion. Last reply by neeraj Mar 25, 2010. 1 Reply 0 Favorites
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Obviously I got your message a bit late on the support meeting today. We have not really found the meetings something we are able to make it to yet. It is so far away from Shakopee to be that early in the morning and we would have to find a baby sitter for our daughter. I have spoken a couple time with Kelley to ask why they can't offer sibling care as an option. That was available in the past at support groups and was a big help. We would love to get together with you all some other time though, with kids or without. We try to do things with Jack and Terry Kirley also, You met Terry with us at the previous MDA meeting and they may have been at the meetings today. We could certainly include them in any get together if you would like.
I hope you are all doing well! I look forward to connecting with you and Anneke again!
I am new to this site as I am from the UK.
I am mom to George, age 5, with DMD. I have some amazing friends who are cycling 20,000 miles for Duchenne. Starting in Halifax and cycling via Augusta and Rochester, Buffalo, Chicago, Mineapolis...Vancouver down to SF, LA and then all the way down to Argentina.
Please join the group "Cycle the Americas". I think they will be cycling near you - if are interested in finding out more or meeting them on their journey (they really want to meet local communities and DMD families) please get in touch.
I spend every spare second campaigning for research and awareness of DMD - would be great to have you on board with this adventure!
Best wishes
Rebecca Bellinger
www.cycletheamericas.org
Tapio, we are all here for you and for your family. Many of us have been here for years, so if you need advice or a shoulder to cry on, you are in good company.
Sharyn.
I just read you recently learned of your son's condition. I am so sorry for your son's diagnosis. I hope this site helps to guide you in a better future for your son.
Please take care,
Julie