Tao Wang
  • Male
  • Pleasanton, CA
  • United States
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Tao Wang's Discussions

Wait four months to join clinic trial or start with prednisone now

Started this discussion. Last reply by Tao Wang Mar 22. 2 Replies

My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatment. We now face a dilemma and would like to hear your…Continue

 

Tao Wang's Page

Latest Activity

Tao Wang replied to Tao Wang's discussion Wait four months to join clinic trial or start with prednisone now
"Thank you Keith and Jill, sorry to hear that your lovely son chase has already been on this difficult path for 10 years!  Your words are very comforting. I can't really think about future since I got the news, but knowing that you have…"
Mar 22
Keith & Jill VE replied to Tao Wang's discussion Wait four months to join clinic trial or start with prednisone now
"Very sorry to hear this.  I can still vividly remember the 'punch to the gut' when we heard the news about our son almost 10 years ago.  However, you've found a great community in PPMD. PPMD recently published a 10-year…"
Mar 21
Tao Wang posted a discussion

Wait four months to join clinic trial or start with prednisone now

My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatment. We now face a dilemma and would like to hear your suggestions based on your experiences. Max is 4 and since he has not taken any medication he is eligible for two clinic trials in UC Davis where the medicine in test are supposed to have less side effects - called Vamorolone and Catabasis if anyone came across it. Both trials are for about 1 year. The…See More
Mar 18
Tao Wang is now a member of PPMD Community
Mar 12

Profile Information

About me:
I am father of Max, who is now 4 and recently diagnosed with DMD
About my family:
My wife and I have two children, son Max who is 4 and daughter Raphael just about 9 months. I also have 2 lovely border collies who has been with my children since they were born.
Name(s) of child(ren)/individual(s) with Duchenne:
Max
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Pleasanton
State:
CA

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