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Tanya Fleming Female Belton, Texas United States: Favorite

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FACES of New Jersey

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Grief and Loss

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Ohio Families

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Special Pants

Started this discussion. Last reply by matt phillips Jul 16, 2011. 15 Replies 0 Favorites

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LET'S END DMD TOGETHER

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About my family:: Let me start out with my oldest son Christopher, he lost his battle with DMD in Dec 2007. It is a loss I can't begin to help you understand at this time, but it is like something inside of me died that day too. He always made me promise to look at the positive in that he lived 10 years longer than any doctors thought possible. He was a true blessing to us. He never complained about anything and believe me he had many reasons to complain.... He always looked to God for his strength and faith. This is what made him truly happy. People have used words like Christ Like to describe him!!!! He was humble, mild, loving, he never blamed God for any of this, he blamed it on the devil, because he is the one that brought evil things into this world, not God. And who of us will not admit that DMD is evil??? We do remain positive, that doesn't mean we don't get sad, but we bounce back from it, sometimes it takes longer than usual, but we always bounce back from it. My Daughter Jennifer is married and has her own family now, yes she is a carrier for DMD, and she is having the tormenting thoughts everyone of us has had in the past, do we test him or not?. We will support each other no matter what the outcome maybe. She is an amazing mother, and has a very wonderful husband Travis, he doesn't even mind it when one of his brother in laws run over his toes, or at least it doesn't bother him. They named their son ( my Grandson) after her brother Chris that passed away, he is Lukus Christopher Ognibene, he is 3 as of 9/14/2013 did I mention how much we all love him... Now this brings me to Joshua he is 20 as of 9/19/2013 and loves video games, is a football encyclopedia, & can tell you any player out in football land. He graduated high school with full credits in 2012. Had Trach Surgery September 2012 ..Justin is 16 as of 2013. He is in 10th grade and is fixing to go homebound because he picks up every cold in school it seems. He has a sip vent instead of trach, which i dont think he fullly understands how it is suppose to work. Justin is very outgoing young man he even helps me work my Ambit business, by telling me who I need to talk to about it. These guys and gals continue to amaze me everyday I have them. Their smiles will melt your heart.

Name(s) of child(ren)/individual(s) with Duchenne:: Chris would be 30 but at 23 he passed away, Jenne 22 (carrier), Josh 20, Justin 16. Also have Luke our grandson age 3..

Age(s) of child(ren)/individual(s) with Duchenne:: 0-3, 13-18, 19 or older

City:: Betlon,

State:: Texas

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At 8:45pm on February 27, 2014, Stacy Anderson said…: I only have one biological son whom has Duchenne's MD and is also 16. I would love to communicate more and get your thoughts on certain issues. I am in awe of your strength! I know that it's all thru God's love and grace that keeps us going. Stay strong and I hope to hear from you soon. God bless you and your family.

At 12:51pm on May 27, 2012, Tammy said…: Hi there, I was wondering how it went with Dr. Rhodes? Did you find any positive results?

At 7:02pm on September 29, 2011, kimmy watters said…: hi tanya thank you very much for added me as your friend, how are you doing today. how is the weather texas, i am on big misson not just to lose weight but to do the seattle half marathon with friends who will help me push me in my wheelchair and i be the most to raise the most money then the boys. not am bragging. kimmy you are always welocme to leave me a message. kimmy

At 4:36pm on March 6, 2011, kimmy watters said…: tanya i am friend of mindy colby. kimmy watters

At 4:34pm on March 6, 2011, kimmy watters said…: hi tanya i am friend of mindy colby i just want to say i am sorry for loss. i truly have alot respect for you. i to have walking issue but i make wonderful day. puttting a posititve face even when i am in pain. i hope to hear f or soon.kimmy

At 7:23pm on March 31, 2010, Tina & Darren Harris said…: Hay Tina harris is now on face book
this is her email dt.harris@bigpond.com
hope to see you there

At 11:44pm on March 16, 2010, VELIA said…: we're fine. now I take time to use the computer. Glad you well. saludos desde monterrey mexico. a big kiss and hug. May God bless you always

At 11:09pm on December 22, 2009, Tina & Darren Harris said…: Hi Tanya, thank you for being my online friend. we hope you have a happy christmas and all the best in 2010 to you and your family
from
Tina,Darren,Tyran,Marshall & Hannah-Lee Harris

At 9:38pm on November 4, 2009, leeann lane said…: hi,you live about 3 hours from me.from the photos you dont look but 16 or so.how old are you,how is your son doing,you have a son with dmd right

At 7:37am on October 1, 2009, Jo-Anne said…: Hi Tanya. Thanks for your message, I know that life is hectic, so no worries. Looking at your photo's you and your lovely family are such an inspiration to me. Emotionally and mentally it is a challenge for me at the moment but am sure I will get through it. I did not get to the conference this year, there is one in Sydney next year and I am definitely going to this one. Hope to learn more about your family and how you cope, you say you are all so strong, it looks like it too. Keep up the good work, you are an amazing mother and have an amazing husband too. Lots of love Jo

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Tanya Fleming's Blog

Help raise money for PPMD

Posted on May 9, 2012 at 10:26pm 0 Comments 1 Favorite

You can save money and help raise money for PPMD at the same time. Switch your energy provider if you live in MD, NJ, NY, IL, PA, TX, or CONN. Each month you pay your bill PPMD will get $4.00 - $50.00 per customer/ per month. So click on the link below for your rate quote, just fill out form as if you are switching. I had an electric bill of $8.62 with Ambit Energy and you can too. Call me for more information or email me.

254-913-2439

TanyaTreas@aol.com In subject put…

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