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Tanya Fleming
- Female
- Belton, Texas
- United States
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Special Pants
Started this discussion. Last reply by matt phillips Jul 16, 2011. 15 Replies 0 Favorites
LET'S END DMD TOGETHER
Profile Information
- About my family:
- Let me start out with my oldest son Christopher, he lost his battle with DMD in Dec 2007. It is a loss I can't begin to help you understand at this time, but it is like something inside of me died that day too. He always made me promise to look at the positive in that he lived 10 years longer than any doctors thought possible. He was a true blessing to us. He never complained about anything and believe me he had many reasons to complain.... He always looked to God for his strength and faith. This is what made him truly happy. People have used words like Christ Like to describe him!!!! He was humble, mild, loving, he never blamed God for any of this, he blamed it on the devil, because he is the one that brought evil things into this world, not God. And who of us will not admit that DMD is evil??? We do remain positive, that doesn't mean we don't get sad, but we bounce back from it, sometimes it takes longer than usual, but we always bounce back from it. My Daughter Jennifer is married and has her own family now, yes she is a carrier for DMD, and she is having the tormenting thoughts everyone of us has had in the past, do we test him or not?. We will support each other no matter what the outcome maybe. She is an amazing mother, and has a very wonderful husband Travis, he doesn't even mind it when one of his brother in laws run over his toes, or at least it doesn't bother him. They named their son ( my Grandson) after her brother Chris that passed away, he is Lukus Christopher Ognibene, he is 3 as of 9/14/2013 did I mention how much we all love him... Now this brings me to Joshua he is 20 as of 9/19/2013 and loves video games, is a football encyclopedia, & can tell you any player out in football land. He graduated high school with full credits in 2012. Had Trach Surgery September 2012 ..Justin is 16 as of 2013. He is in 10th grade and is fixing to go homebound because he picks up every cold in school it seems. He has a sip vent instead of trach, which i dont think he fullly understands how it is suppose to work. Justin is very outgoing young man he even helps me work my Ambit business, by telling me who I need to talk to about it. These guys and gals continue to amaze me everyday I have them. Their smiles will melt your heart.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Chris would be 30 but at 23 he passed away, Jenne 22 (carrier), Josh 20, Justin 16. Also have Luke our grandson age 3..
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3, 13-18, 19 or older
- City:
- Betlon,
- State:
- Texas
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Help raise money for PPMD
Posted on May 9, 2012 at 10:26pm 0 Comments 1 Favorite
You can save money and help raise money for PPMD at the same time. Switch your energy provider if you live in MD, NJ, NY, IL, PA, TX, or CONN. Each month you pay your bill PPMD will get $4.00 - $50.00 per customer/ per month. So click on the link below for your rate quote, just fill out form as if you are switching. I had an electric bill of $8.62 with Ambit Energy and you can too. Call me for more information or email me.
254-913-2439
TanyaTreas@aol.com In subject put…
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Hi there, I was wondering how it went with Dr. Rhodes? Did you find any positive results?
this is her email dt.harris@bigpond.com
hope to see you there
from
Tina,Darren,Tyran,Marshall & Hannah-Lee Harris
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