PPMD Community

Stacy Anderson Female blytheville, AR United States: Favorite

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About me:: I am a very compassionate person who loves her family very much. I work full-time and try to manage the appriopate therapies for my son. I'm very easy to talk to and try to help if possible. I love God and am grateful for my son, Sean. I would love to meet people with a son like mine and share thoughts and maybe support each other thru the hard times.

About my family:: I have been married to my husband for 17 years and we have our son, Sean, and a son from my husband's previous relationship, Adam. We all try to help out and make sure the Sean knows that he is loved. We are a close family!

At 12:56pm on December 10, 2017, Margarita Yashchenko said…: My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 10 years old. Doctors diagnosed the illness at the age of 6.5. In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such asstretching) every day. For 2 years we have been able to stop the disease. But last 2 years my son fells woster than it was early. I would like to communicate with the American parents and doctors who probably know more about new medicines or methods for treating this condition. My email my-science@ukr.net. If you have a free time write me on my email I wiil wait.

At 7:03am on September 20, 2017, Margarita Yashchenko said…: My name is Marharita. I am from Ukraine. I have a son with DMD. He is 10. I write lerttes to people from different country. I would like how do they live with this illness. My son have goes to school on the fourth grade . But ukrainians doctors haven`t known how help us. So, just know more and will have community. If will have a impossible so write me about you. My email my-science@ukr.net.

At 11:30am on January 19, 2009, Kim Innabi said…: Hi Stacy, your family is beautiful! You will find so much helpful information and make so many friends through PPMD - welcome! Thanks for adding me as a friend to your page and any time you want to talk or need some support, let me know - we are all here for eachother. DMD does have many challenges that is for sure!! I have to run now...my son has a neurology appointment this morning. Take care and keep in touch!!!

At 12:47am on January 18, 2009, Carol Keskeny said…: I still have my crying jags, I guess it is part of being a mother and wanting the very best for your child. If you ever have a question or just want to "vent' please write me! I think the biggest thing to learn is that you are not alone! Feelings of guilt, rage, lost and confused are apart of what all of us go through. I feel so very, very lucky my son has made it so far, and of course, he is a wonderful human being! Thanks for writing

At 9:04pm on October 26, 2008, Marian Lamberson said…: Hi Stacy, your family is beautiful. My 7 year old son was diagnosed in July. I have a 18 months old son who may have this as well. Good luck to you and your boys!! God bless.!!

At 11:09pm on October 21, 2008, Leah stevens said…: dezi is 11 will be 12 in november. he is the seven boy in our family to have DMD but that is dating back to 1829. dezi is still walking and has been on deflazacort for 2 years now with no side effects. he was diagnosied when he was 7. dezi's gate is a little off but other wise normal. he uses his wheelchair just for long distances. he does most things for himself he is very independant.

At 9:03am on October 13, 2008, Susan said…: Hi Stacy - Thank you for writing, and welcome aboard. What a beautiful family you have! Sean looks like he's got eyelashes to die to for! Quinton does too--I don't know where he got them.
Yes, we try not to lose sight of how blessed we are. I just want so much for Quinton to feel comfortable about who he is and how he fits in to this world, and I don't know how to make that better for him. When you have a chance to write back, maybe you can let me know how you feel Sean is doing and what you think benefits him the most.

At 4:18pm on October 12, 2008, barbara stringer said…: Hello Stacy, you have a lovely family. This site will be very helpful to all of you. It's a wonderful tool to have for support and guidance. I wish you all well. Barbar

At 3:56pm on October 12, 2008, Angela said…: Welcome, Stacy!
I saw the picture of Sean with the Shamus and had to check it out. My son, Jack, is a Shamu freak and has about that many in his room. Great picture!!!
Ang :)