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  • Jay Griffin

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For anyone interested in prayer.

Started this discussion. Last reply by Shawn Jan 12, 2016. 15 Replies

My name is Andrea, and my husband, Shawn, and I have two sons, one with Duchenne. We are followers of Jesus - Christians - and though we questioned and challenged God when we got our diagnosis, we…Continue

Deflazacort no longer available in the US?

Started this discussion. Last reply by Shawn Sep 27, 2016. 7 Replies

We ordered Deflazacort for our son nearly a month ago from Masters in the UK and hadn't received it. Got a letter today from the US FDA at the Los Angeles Port of Entry saying the shipment is being…Continue


Shawn's Page

Latest Activity

Shawn replied to Tao Wang's discussion Wait four months to join clinic trial or start with prednisone now
"I'm sorry to hear this too. Keith and Jill, your reply was spot on. Everything you wrote was what we've experienced. Tao, the first couple years are the worst. But yes it does get better. Our 14 year old son loves life. He's had an…"
Jun 27, 2019

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Age(s) of child(ren)/individual(s) with Duchenne:
Tucson, AZ

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At 8:12am on January 12, 2016, Jay Griffin said…
Andrea, I know it's early your time. Are you able to talk later.

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