Started this discussion. Last reply by Lee Ann Faeth Mar 25, 2010. 17 Replies 0 Favorites
Started this discussion. Last reply by Ofelia Marin Dec 1, 2008. 17 Replies 0 Favorites
Started this discussion. Last reply by Rhiannon Traigle Aug 11, 2008. 27 Replies 0 Favorites
Posted on September 21, 2008 at 3:41am 2 Comments 0 Favorites
Posted on June 22, 2008 at 2:40am 9 Comments 0 Favorites
© 2023 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
Comment Wall (139 comments)
You need to be a member of PPMD Community to add comments!
Join PPMD Community
A little funny aside from a post I see here about planning a trip at birth and when you find out that your destination has changed. We also have two girls. I want you to know that "Holland was a great journey with John." But Italy isn't all it is cracked up to be with the girls :) I think Holland was easier :) If you ever have questions, etc....drop a note. But know I pray everyday that no other family has our DMD outcome.
Great article on advocacy posted in the March newsletter by the way. Very well-written and well-expressed.
How are the behavior issues going with Riley? We have had quite a few things creep up starting about a year and a half ago. He had been on steroids for about 6 months at that time. Mentioned this to our Dr. at CHOP. He told us to wait before we start moving with anything. Issues did not subside. More issues in a new school this year. Had him evaluated and came up as at risk or clinically significant for lots of areas (ADHD, anxiety, OCD, asberger's). We are now going through Children's Hospital of Phila's behavioral health dept. to see what they recommend. It's not an easy road. One of the best things that happened was Elliott working with someone from our area Intermediate Unit this summer. She gave him a great strategy to manage his anger. It goes along with a book and he needs to practice "turtle" (a turtle in the story has some anger management probs :) To practice turtle he needs to stop, explain the problem and then say how the situation made him feel. It was not instantaneous, but over timed it worked. If you are interested, I'll get you the name of the story. If I can help in any other way, please let me know.
On another note...did you go to the conference? If so, fill me in. How was it? How are you doing and Riley?
I was surprised how much the conference was. That is why my husband is not going. I am taking your number with me. I am riding with Jessica Round. I hope we can get together. Talk to you soon, Kim
Just checking to see if you are going to the conference. I would really like to meet you in person-you don't know how much you calling me helped me. I eventually would have heard of dr. Wong, but not as soon. We saw her in April and are scheduled to see her in December. Talk to you soon, Kim
Best wishes Emma x
View All Comments