Rajiv Pandey
  • Male
  • Lucknow,Uttar Pradesh
  • India
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Rajiv Pandey's Friends

  • Ambrish Kapadia
  • Anup Kalra
  • Vicky Singh
  • RAKTIM SINGH
  • Tulika
 

Rajiv Pandey's Page

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About my family:
My Son Ishan 8+ diagnosed with DMD.-(16-11-2009)
Name(s) of child(ren)/individual(s) with Duchenne:
Ishan
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Lucknow Uttar Pradesh

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Rajiv Pandey's Blog

My Son Ishan who is 8Yrs and 4Months has recently Diagonsed with DMD.

Posted on July 29, 2010 at 9:18am 3 Comments

My Son Ishan who is 8Yrs and 4Months has recently Diagonsed with DMD. Continue

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At 10:09am on November 7, 2012, Ambrish Kapadia said…
Hi mr Rajeev

Wish you and your family very pleasant Diwali and great new year . I don't remember if we have met any time . I had come across one mr Rajiv in a Myocon seminar in chennai in jan 2012 .Are you the same person ?

Ambrish
At 4:42am on May 31, 2011, RAKTIM SINGH said…

Hi Rajiv,

 

I am giving DEFCORT to my son( now 7 years old). DEFCORT has less side effects. You can start giving DEFCORT on alternate days. It helps in preserving muscles+strength. Also, if you start DEFCORT, you need to give one calcium syrup also.

Have you done MLPA test for Ishan. It will help in knowing which exons are deleted etc. I think, this test happens at Gangaram,Delhi.

Take care and MAY GOD BLESS YOUR FAMILY.

Raktim

 

 

At 1:52am on July 30, 2010, Tulika said…
Hi Rajeev,
I am also also from Lucknow and my 7.5 year old also have DMD. I am currently in Netherlands.

Getting the news about DMD is a very tough period. Every on on this board has experinced this and as a community we try to support and help each other. Its a long long fight ahead of us, but we will make through.

Welcome. There is a whole world out there to help you and your family.
At 10:25am on July 29, 2010, RAKTIM SINGH said…
Hi Rajiv,
My kid is 6.1 years old. We came to know about this last year. I am as such from UP, currently working in Bangalore.
At 9:34am on July 29, 2010, lisa burke said…
Welcome Rajiv, your son is lovely!
Take heart as we will beat this disease.
Lisa (mother to Seth 19 months with DMD)
 
 
 

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