Hi All,I am moving to the US, and hoping to enrol my 4 year old son for etiplersen phase 3 trial. We have an option to move to any city of choice. Can you please suggest which could be the best city…Continue
Sorry to hear abt your son's diagonosis . My son was 18 mts old when he was diagonosied with DMD . Now 6.5 yrs .
We are a group of parents in india who have been working hard towards initiating research and trial activity indegenously .
Since you are in Delhi i would suggest you contact Dr Aalok Makker who is one of the very active and intellectual parents of our group . He resides in Delhi and is a father of 8 yr old DMD boy . Further i can also suggest you join www.mdsociety.org and upload your son's MLPA report there . There are already more than 450 parents registered there .
Aaloks email id is email@example.com
My personal email id firstname.lastname@example.org
PS- You can also find Aalok on this site in my friends list