Hi Patrick, I have to write to you because you remind me so much of my nephew, Storm, who has Duchennes. I wish you could meet him. If you want to be friends with me, I am not quite sure how to do that but would be glad to be friends. Maybe you could invite me to be a friend and I will look on my facebook page a couple of times in the coming week. Thank you. Sharon A. Wood of Ashford, CT. Bye for now.