Hello,
Sorry I haven't been very active with everyone on this site. Hope everybody is doing well in Denver? I know your son is very young, however I have a few qusfions regarding health care in Denver Colorado, because I might be moving their.
Do you know if the health care system is good for poor people on ventilators with DMD?
How does Medicare/Medicaid work in colorado?
Do you know of anyone with DMD on a ventilator you could referr me to in Colorado?

Thanks,
Greg

Dear Pamela,

I just wanted to say hello. I notice that your younger kids are close in age with mine. My daughter, Hazel, is 4 and my son, Rain, who has DMD, is going to be 2 this spring.

I hope you and your family are hanging in there. The new diagnosis time is intense. Let us know if there is anything we can do to help.

Ivy

Pamela,

What a gorgeous little boy!! He is just adorable! I bet you just love giving him big cuddles all the time.

How are you handling things since his diagnosis? I know, for a long time, it seemed so dark in our life, but we're getting there. As long as you have a good network of incredibly supportive friends, you will be okay. And whenever you need to talk about something that your friends won't understand (ie DMD-related or having a sick child) then you can come on here and we will be here to listen and/or give helpful advice.

Sharyn.

your little one is just gorgeous....Are you a carrier? How are you coping? I am here for ya, if you need a shoulder...

Hi Pam,
I am really looking forward to meeting your whole family! After Christmas would be great. Both the pictures you and Michael have are darling!! What a cutie Christopher is! Have a wonderful holiday!!!
Ang :)