My name is Anthony and I live in Independence, MO. My son, Quinten has DMD also. Our other son Nate is unaffected. We pass through your town a couple times a month when we go to Truman Lake. We are always looking to meet families that have been affected by DMD. If you would like, please contact us. I have also sent this message to Douglas Milford.
I'm so sorry about Logan's diagnosis. What an adorable little boy! I would say that you are doing great, reaching out after only two months. I think I was just barely functioning after two months! The good news is that we are so very close to a cure and we just need to keep raising money and keep our boys strong until we find the it! And I believe with all my heart that it will come! If I can help you in any way, please don't hesitate. The people on the PPMD website are incredibly knowledgeable but if you ever need anything, please ask. Thanks for writing, keep in touch!