Hi, thanks! Photo of in hospital is in March 25th 2010 when dylan was there for "Scoliosis Surgery". He was well enough to go back to school in six weeks. It was hard and uncomfortable for him. But now we are past that. Thank God. He has titanium metals in in back now.

Thank you for the comment. I hope all is well.
Dina

Thanks so much! I took the one of Brandon looking away with the black jacket (with something red on the front). That is an awesome picture!!

Hi, I am writing to ask you if I may use a photo of Brandon for a slide show I am putting together. We are having a fundraiser for my son and for PPMD in July. I put together a slide show so that attendants may see the boys around the country they would be helping by donating. I would love to add a photo of Brandon if that is ok with you.
Rhiannon

Hi MommaToo. I have applied for SSI for Austin and was denied due to my income. They told me that he could probably get medicaid. When I asked if we could get medicaid when we have insurance, they said well, probably not.

So, to answer your question, most of us make too much $$. Or already have insurance. I have applied for a couple of different services: DADS, and some others, I'll let you know once I find all of them again. Just so you know, there is help out there, but most of it you will not recieve until he is 18 yrs old, and not making his own income.

Sorry to tell you this, trust me, I know it sucks. It'skinda like we get punished for working..... No offense to anyone, but it seems like we qualify for nothing.

Another thing I can tell you..... Depending on where you live, try the St Jude's hospital. You will have to go through all of their Dr's and Specialists, so depending on how long you've had a diagnosis may help you decide if you want to do that. We've decided we didnt want to lose all the Dr's we already have.

I've only been in Texas for going on 5yrs, so, I dont know everything, but sine dealing w/DMD I have learned alot. Just hollar if you have questions or need to talk.

Sorry this is so long, it's in answer to the question you asked in Texas families. Welcome to Texas!!!

ooh, I'm so glad my post was useful! If you need any tips just let me know. It's hard to know what's out there until you've heard it from other people. Frankie stuggled for ages with using a keyboard until someone showed us the onscreen keyboards, so sometimes there's a problem and you don't even know there's a solution! That's why these kind of pages are great. I loved looking at your pictures by the way! Brandon looks really cute! (I know parents aren't allowed to call their kids cute once they're in their teens) but he does! You can really see the love in your family too! Great electric chair he's got!

Thanks for your comment, it didn't sound strange at all. I actually have another twist to my life, my husband of 20 years can't cope with the way this life is going, he has been withdrawal for about 13 years now and now we are getting Divorced. But believe me when I say things are better when he is not around, I still love him, but he brings doom and gloom to the family, which is how he was raised, not me, you have to stay positive for the children you are caring for, it is not time to be selfish. I love your Pictures!
Tanya

Thanks for your reply to my question, I appreciate your insight.

Susan

How old was Brandon when he was diagnosed? Do you have any other children? Look forward to talking again soon.
Alicia